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Thursday, September 29, 2016
Bleeding and Clotting Disorders
Hemochromatosis and Low Iron
Dear Sir or Madam: I am a hemochromatosis patient. My iron and saturation levels have recently fallen, and I have no idea why. Is it normal for iron levels in HH patients to be low and stay at a low rate? In addition, is it normal for HH patients to have low iodine levels?
While it is not possible to comment on the specifics of your case in this forum, if you are on a phlebotomy program, that could affect these measurements.
In general what should be followed is the ferritin, with a goal for the ferritin to be approximately 100. The iron and iron saturation will be affected by a lot of other things, and therefore should not be routinely followed. Regarding the iodine, I am not aware of any connection between HH patients and iodine levels.
Spero R Cataland, MD
Associate Professor of Clinical Internal Medicine
College of Medicine
The Ohio State University